Have you ever dealt with a chronic illness and struggled to explain to your healthy friends why you just can’t go out with them anymore? Have you ever heard someone say, “I don’t have the spoons for that,” and wondered what they were talking about? They’re talking about Spoon Theory! In this article, I’ll provide a basic overview of spoon theory, how it was created, how it’s used, and further expansions on spoon theory that I’ve found helpful.
Tag: chronic pain
I Can’t Fix Myself But I’m Supposed To
Sunflower Punk’s guest article covers her life-long struggle with chronic pain, living 6 years with an untreated broken ankle, doctors blaming her health problems on her weight, inaccessible housing, and juggling all of those while also raising a kid as a single mom. It’s worth a read as is her follow up post today.
A Day in the Life of Ehlers-Danlos Syndrome
While scrolling through twitter, I found a fellow EDS disability advocate had created a thread detailing what it was like to live a day in the life of Ehlers-Danlos Syndrome. I was inspired to write my own account, to make visible all the tiny little adjustments I make all day long to live with this condition.
Guest Post on ‘Splain You a Thing: Why It’s Hard to Reveal My Disability to Strangers
To make sure you all continue to have something to read during my writing hiatus, I’m happy to present to you a guest post I wrote for the social justice blog, ‘Splain You A Thing.
What Ableism Feels Like
I became disabled late in life, at which point I had to completely restructure my mental understanding of what to expect of my body. I was also introduced to the world of ableism. Ableism had been happening all around me but it wasn’t until I was disabled that I had any idea what ableism feels like.
10 Things I Love About Being Disabled
Disability is often discussed in terms of tragedy and hardship. It’s not very often that you hear someone talk about the things they love about being disabled. But maybe we should.
New Clothes: Disability Accommodation & Body Acceptance
This article captures a moment in time when I was going to start receiving financial support, which granted me the freedom to focus on ways I could implement disability accommodation into my life, instead of always fighting back.
The Blue Book: The First Time I Learned About Ehlers-Danlos Syndrome
When my physical therapist gave me a book about ehlers danlos syndrome, I thought I would be reading about joint instability but this book wasn’t just about my pain problems. The book contained a list of every serious health problem I had ever had in my life, and potentially, a reason why they were connected.
Why Don’t I ever see you Dancing? What is EDS?
The answer to the question “Why don’t I ever see you dancing?” is the same as the answer to the question, “What is EDS?”
26
This is the old version of the article “9 Things That Blocked My Access to Medical Treatment”